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Monthly Archives: May 2015

placebo sleep

Posted on May 5, 2015

Bear with me; I am obsessed with sleep.

I have always believed sleep was one of the things I had going for me, that sleep was something I was good at, not by skill but by good fortune.  If I was tired all the time it was because Mr Moth snored and kept me up, or because I hung up in dream sleep and never achieved the other stages of sleep where rest occurs.  But I have never had trouble falling asleep.  Shortly before the apnea dx, I posted on Facebook and had a discussion with my mother, about how strange it is to me that (I had read that) people make a conscious decision to close their eyes and wait to fall asleep.  I have never done that, ever.  I just put my book away and go to sleep.  And I have rarely had trouble staying asleep, unless I was ill, or the dogs were restless, or had a baby.  Even when I had to tinkle eleventy times a night, I had no trouble going back to sleep each time–although, come to think of it, each awakening did seem to require a disproportionate amount of extra sack-time.

I used to dream a lot, and vividly.  That’s apparently a sign of moderate apnea.  I haven’t dreamed in a long time.  Apparently that’s a symptom of severe apnea.  If I could remember when I stopped dreaming all night every night, it might give me a time frame for when this problem tipped over into severe.  It’s been since we lived here, but beyond that I don’t recall.  I suspect it happened when the Actos shoved me past some tipping point weight-wise, because everything really started snowballing when I went on that drug, but it happened slow-ish, and going back off it has not completely reversed the symptoms–because they are apnea symptoms.  I hope.

Anyway, that’s not what I wanted to talk about today.  I wanted to talk about placebo sleep.

I surfed from Facebook to “14 Amazing Psychology Facts Everyone Needs To Know” because I am too brain dead to read anything real, and I was waiting for the plagiarism checker to process my final exam paper (because I am also too brain dead to trust myself not to accidentally steal someone else’s concepts or ideas simply because I can’t remember where anything came from.)  I was initially interested in the graphic that said, Don’t tell your goals to anyone, but I was quickly sidetracked to list item #10, that said:  Convincing yourself you slept well tricks your brain into thinking it did.

Did I mention I’m obsessed with sleep?

Here’s the source article for that, which in turn cits a study in the Journal of Experimental Psychology conducted by Colorado College, which seems to indicate that being aware of how tired you are makes you more tired.

I’m not going to try to track down more links to back this study up. Instead I’ll just say that, if accurate, it explains a lot.  As soon as the sleep lab said, “You aren’t sleeping, you’re smothering, and we have computer readouts that prove it,” I nosedived, and hard.  Went from barely functional to practically crippled.  This study explains why that happened, if they took away my placebo sleep and that was really all I had going on, sleepwise.

And if that’s true, believing the xpap therapy will work, will make it work, at least to an extent.

I wish I were more convinced it will work.  I’ve been chasing this for so dang long.  I lost most of last summer to dizzy spells, and now this summer is here and even the bathroom seems too far away.

The Home Medical people finally called, and I’m supposed to go pick up the machine tomorrow morning.  Wish me good luck that this goes as smoothly as possible, because I am so tired.

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Posted in Diary | Tags: health |

apnea and stuff

Posted on May 1, 2015

I suspect I’m not unusual in that, when I am diagnosed with anything, I go to the web and research it.  Probably everyone who does this, does it for the same reason I do–to get some idea what to expect.  That result is iffy; everyone is different.  But the internet really helped me, back when I was practically paralyzed with anxiety and discovered Sam-E.  I really think that, in addition to alleviating the anxiety and enabling me to function emotionally again, Sam-E (and the B-complex I necessarily took with it) has also protected me from the worst of the MTHFR issues I might otherwise have developed by now.  I have also not suffered any major boil eruptions since I began taking Sam-E, and I can’t even express how huge that is.  So while I have no idea how that might work, thank you for that also, internet.  (And sorry for the TMI-grossness.)

But right now the top headline in my health news is the sleep apnea.  I have googled around, and not really found any reports, blog entries, etc., on the topic that quite reflect how I feel.  And, yanno…we don’t really know yet that how I feel is entirely caused by the apnea.  We won’t know until I get my machine and commence treatment.  If it works, it’s the apnea causing my problems.  If it doesn’t, we’ll have to resume the search, and the next step will be a neurologist because pretty much all other possibilities have been eliminated.

I’m hoping it’s the apnea, frankly.  I’m so tired of the hunt.

It’s been two weeks yesterday since the last sleep study.  They said I should have the machine in three weeks.  I still have not heard anything from anyone, except a call from the Lung Doc wanting to schedule a follow up.  His employee sounded surprised I hadn’t heard anything about the machine yet.

Frankly the delays annoy me.  Everything annoys me.  Apparently this is not an uncommon symptom among people who are chronically sleep deprived.

I kind of miss the days of not knowing I was sleep deprived.  Now I notice that I am waking up repeatedly, panting like I have just run a marathon.  Less so, if I fall asleep sitting up on the sofa, but that is only good for a couple of hours, when my legs go to sleep and the tingling wakes me up.

I also try to sleep on my stomach, but that is not extremely comfortable either because, well…boobs.

Sigh.  What a whinebag I am!

And yet I whine.  Today’s whine is, I should not have to sit around for three weeks waiting on a phone call.  (It has taken me four days to write this entry.)  My three weeks is up on Sunday, so I called today (Friday) and spoke to a fellow named Mike who said my xpap is n the “final stages of pre-approval with the insurance company.”  That would be BCBSAnthemWhatever.

Color me unsurprised, and put some symbols in a little balloon over my head.  Rassafrassin sassafrassin insurance.

One of the side-effects of apnea is emotional instability.  So when you read on the news that some crazy middle age fat lady fed her pet dragon exlax laced with napalm and flew over the Anthem headquarters, you won’t have to wonder why.  You’ll know why.

She was tired.

Mike said that I should hear early next week, and if I don’t hear by Tuesday I should call their Respiratory Therapist Anne and inquire again.

Nagging.  It is my super power, and remains so even in my depleted state.

Making a grocery list, not so much, so I need to go do that.  Zor, our living-with-us adult kid, got a restaurant job this week so she can save up to buy a car and pay her tuition at the next school, and we are all adjusting to that.  They feed her there, so that means I don’t have to take her taste into account for some dinners, whee!  On the other hand, I don’t know what her schedule is going to be, so boo!

Flexibility.  I heard of that once.  I think it’s something reserved for people who don’t have obligations.

Peace.

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Posted in Diary | Tags: health |
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